Rare Disease Commission
Board and Commission Details
Website
Contact Name
Joan Ehrhardt
Contact Title
Department of Public Health
Contact Phone
217 782 0843
Function
To advise the State on issues pertaining to the care and treatment of individuals with rare diseases. This Act is repealed on January 1, 2027.
Term
3 years. No member shall serve more than 2 consecutive terms. Members shall serve until a successor is appointed and qualified. Vacancies shall be filled in the same manner as the initial appointments. Appointments to fill vacancies occurring before the expiration of a term shall be for the remainder of theunexpired term. The Governor, House Speaker, House Minority Leader, Senate President, and Senate Minority Leader shall make their initial appointments to the Commission by February 1, 2017.
Senate Confirmation
No
Compensation
N/A
Composition
15 Members: 11 appointed by the Governor, residents of the State whose position, knowledge, or experience enables them to reasonably represent the concerns, needs, and recommendations of those with rare diseases, including physicians or health care providers who treat patients with a rare disease, 5 members, at minimum, shall be persons who either have a rare disease or are a family member; 4 General Assembly members, 1 appointed by the Senate President, 1 appointed by the Senate Minority Leader, 1 appointed by the House Speaker, 1 appointed by the House Minority Leader
Authority
410 ILCS 445
Member Names
| Name | Member Expiration | Member Since | Affiliation | Appointed By | Position | Title | County |
|---|---|---|---|---|---|---|---|
| VACANT | 03/01/2023 | Governor | Member | ||||
| Jones Asad, LaToya Marie | 03/01/2026 | 12/13/2024 | Governor | Member | Cook | ||
| Feuer, Stacey | 03/01/2023 | 03/26/2021 | Governor | Member | Cook | ||
| Bellefeuille, Maria | 10/01/2026 | 10/11/2024 | Governor | Member | Lake | ||
| Hughes, TaLana | 03/01/2023 | 03/10/2022 | Governor | Member | |||
| Clay, Joyce | 03/01/2026 | 03/26/2021 | Governor | Member | McLean | ||
| Cunniff, Timothy | 03/01/2023 | 03/10/2022 | Governor | Member | |||
| Gross Pollock, Maria | 03/01/2026 | 04/25/2022 | Governor | Cook | |||
| Pigott, Stacey Hyland | 03/01/2026 | 05/30/2023 | Governor | Member | |||
| VACANT | 03/01/2023 | 03/26/2021 | Governor | Member | Cook | ||
| VACANT | House Minority Leader | General Assembly Member | Representative | ||||
| Harper, Sonya | 09/14/2016 | House Speaker | General Assembly Member | Representative | |||
| Barickman, Jason | 02/28/2017 | Senate Minority Leader | General Assembly Member | Assistant Republican Leader | |||
| Holmes, Linda | 01/15/2018 | Senate President | General Assembly Member | Senator | |||
| Pullen, Laura | 03/01/2023 | 05/14/2021 | Governor | Member |